About Us

Our mission is to improve care for people affected by Parkinson's disease and related disorders (PDRD)

We aim to achieve this by:
  • Raising awareness of the challenges faced by patients and families with PDRD and the additional support they may need
  • Testing a new model of care that provides an extra layer of support to patients with PDRD, their families, and the doctors in communities across the US

Meet Our Neuro-Palliative Care Team

We’re passionate about improving care for all patients and families affected by Parkinson's and related disorders. If you ever have questions or need assistance, our dedicated team is just a message away.

Study Team

Benzi M. Kluger (MD, MS)
Neurologist & Principal Investigator

Dr. Kluger’s research focuses on non-motor symptoms in Parkinson’s disease, particularly fatigue and cognitive issues. Dr. Kluger is interested in improving our understanding of the causes of these symptoms using psychological testing and other imaging techniques to examine brain activity. He is also very interested in developing better therapies for Parkinson’s disease patients with fatigue and cognitive difficulties.

Amina Alio (Ph.D)
Community Outreach Specialist

Dr. Amina Alio is a Public Health researcher dedicated to promoting health equity, diversity, and inclusion in healthcare. Her expertise lies in using community-engaged approaches and mixed-methods to identify and address disparities in health outcomes across diverse populations, with a focus on African Americans and the Diaspora. Her work emphasizes the importance of culturally relevant approaches to health promotion and disease prevention, aiming to foster sustainable improvements in health outcomes for marginalized groups. Dr. Alio has worked with communities nationally and globally to conduct research in disparities primarily in sexual and reproductive health outcomes.

Connor DeFehr
Study Coordinator & Chaplain

A trained Chaplain with a strong background in spiritual care, Connor was drawn into Palliative Care through his work as a Hospice chaplain, then at Strong Memorial Hospital where he worked alongside palliative care teams in Wilmot Cancer Center as well as with Neuropalliative Clinic with Dr. Benzi Kluger. His passion for palliative care stems from being a part of an interdisciplinary team of chaplains, social workers, physicians, etc. and witnessing the many layers of care people with Parkinson’s and other related diseases benefit from. He longs to see the expansion of these services for the benefit of more people and is grateful to be a part of the mission of COPE-PD to advocate for this powerful model of care.

Ashley Updike
Research Coordinator

Ashley has a strong interest in advancing patient-centered care through clinical research. Her work in the Emergency Department at Strong Memorial Hospital focused on connecting a diverse patient population with opportunities to participate in research studies, guiding them through the informed consent process with clarity and compassion. Ashley also served as a mentor to junior associates, fostering their growth in clinical and research competencies. Her passion for medicine is rooted in a desire to contribute to interdisciplinary care teams and advocate for equitable, evidence-based treatment. Ashley recently graduated from the University of Rochester and plans to pursue a career as a physician.

Patient and Family Advisory Council

Kirk and Linda Hall
Richard Huckabee
Chris Krueger
Tom Manak
Bernadette Skobjak
Malenna Sumrall